Losing something as precious as your vision can cause a range of emotions. It’s common, expected and hopefully temporary to feel down in the wake of a diagnosis of Age-Related Macular Degeneration (AMD). What’s important to know is that while living with AMD may present challenges, most people settle into this new normal to live happy and productive lives.

Your Mental Health with AMD

Many people experience grief when diagnosed with AMD, especially if there’s already some vision loss. If you’re experiencing a profound sense of loss, know that it’s not unusual and that as with any grief, your emotions may go through several stages before you settle into your new normal: denial, anger, depression and then acceptance. You may have experienced these feelings before. If so, you’ll know that you need to give yourself time to adjust. 

For some people, the unpredictability of AMD can be emotionally unsettling. Macular degeneration presents so many unknowns: will my vision stay the same or worsen, and how quickly? Will I be able to remain independent or will I need to rely on others? When will I have to stop driving? These are just some of the concerns that can negatively impact your mental well-being. One way to cope is to remind yourself that many people with significant vision loss continue to live independently or with some help at home. 

Need to Talk?

Sometimes, talking things through can help clear your mind and find a path forward. If you're feeling overwhelmed or just need someone to listen, consider reaching out for support. You can contact: 

  • Mental Health America: Access their resource page to find various forms of support, including talking to someone at Mental Health America's website
  • Crisis Text Line: For a more accessible, text-based option, you can connect with a trained crisis counselor by texting "HELLO" to 741741. This service is free, available 24/7, and confidential
  • Your local mental health clinic: Many communities offer local mental health services. Check your local listings to find a clinic or counselor near you

It's important to remember that it's okay to seek help whenever you need it—whether you're facing a crisis or just need a supportive conversation. 

Understanding Life with AMD  

Many of the recommendations that doctors give patients who are going through emotional distress will help support you during your journey with AMD.

You may find yourself needing to revisit these actions during the course of your disease if it progresses. If you have a sudden loss of vision, or develop AMD in the other eye, or go from dry to wet AMD, you may re-experience what you felt on first being diagnosed. So, whatever you’re feeling, it’s a good idea to tune into your emotions and learn what helps you feel better. The coping mechanisms you developed now will help build resilience for whatever comes your way. 

  • Learn about AMD: Gaining a better understanding of AMD is empowering on many levels. Not only does it give you a feeling of being more in control of your life, but by learning what you can about your condition, you’ll improve communication with your healthcare team and also be able to help those around you better understand what you’re experiencing. 
  • Embrace change: Even if you have no symptoms, adjusting to life with AMD is an ongoing process of assessing and reassessing. If you have symptoms now, focus on what you’re still able to do, which is probably more than you think. Then work on finding new approaches to doing tests that are becoming harder. Your life might not look exactly the same as it did last year, but life is change. Even a year ago, your day-to-day was far from what it was when you were 30. 
  • Stay connected: Some people sideline friendships and family during this time. If that sounds like you, make every effort to fight your impulse to isolate yourself and reach out to your close circle, as well as telling neighbors with whom you’re in regular contact. Close relationships are important and in your future. They can help curb sadness and anxiety, and research shows that they’re vital to your overall health. Approximately 1 in 10 adults over age 50 have AMD. Odds are you know someone else who also has AMD.
  • De-stress: Besides being good for your retinal health, regular exercise—even just taking a walk—is thought to lift your mood by boosting certain “feel-good” brain chemicals. Practices like yoga and tai chi can help you relax, focus and regain mental balance. And there are relaxation techniques like mindful meditation that you can perform on your own using a YouTube video to learn. 
  • Take action to stem vision loss: It’s never too late to start living a healthy lifestyle. Make a plan to do all you can to protect your vision and then follow it. Taking charge of your life with AMD will help you feel better. 
Make a personalized AMD Action Plan

If You Think You Might Need Help  

Sometimes, despite our best efforts to curb sadness, it doesn’t help. This could be a sign of clinical depression. If you are experiencing the following symptoms more days than not, tell your healthcare provider. 

  • Feeling helpless, hopeless and pessimistic 
  • Feeling tired or having no energy 
  • Not wanting to do activities and interests you previously enjoyed 
  • Sleeping too little or too much or waking up often 
  • Having trouble concentrating or making decisions
  • More aches and pains than before 
  • Thoughts of suicide 

If you or someone you know is in crisis and needs immediate help, it’s crucial to contact a local emergency number or a mental health professional immediately. For those in the United States, the National Suicide Prevention Lifeline is available 24/7.  

You can reach them by calling 988 

This line connects you with trained counselors who can provide support and guide you to the necessary resources. Remember, you are not alone, and help is available. 

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