Losing something as precious as your vision can cause a range of emotions. It’s common, expected and hopefully temporary to feel down in the wake of a diagnosis of Age-Related Macular Degeneration (AMD). What’s important to know is that while living with AMD may present challenges, most people settle into this new normal to live happy and productive lives.
Many people experience grief when diagnosed with AMD, especially if there’s already some vision loss. If you’re experiencing a profound sense of loss, know that it’s not unusual and that as with any grief, your emotions may go through several stages before you settle into your new normal: denial, anger, depression and then acceptance. You may have experienced these feelings before. If so, you’ll know that you need to give yourself time to adjust.
For some people, the unpredictability of AMD can be emotionally unsettling. Macular degeneration presents so many unknowns: will my vision stay the same or worsen, and how quickly? Will I be able to remain independent or will I need to rely on others? When will I have to stop driving? These are just some of the concerns that can negatively impact your mental well-being. One way to cope is to remind yourself that many people with significant vision loss continue to live independently or with some help at home.
Sometimes, talking things through can help clear your mind and find a path forward. If you're feeling overwhelmed or just need someone to listen, consider reaching out for support. You can contact:
It's important to remember that it's okay to seek help whenever you need it—whether you're facing a crisis or just need a supportive conversation.
Understanding Life with AMD
Many of the recommendations that doctors give patients who are going through emotional distress will help support you during your journey with AMD.
You may find yourself needing to revisit these actions during the course of your disease if it progresses. If you have a sudden loss of vision, or develop AMD in the other eye, or go from dry to wet AMD, you may re-experience what you felt on first being diagnosed. So, whatever you’re feeling, it’s a good idea to tune into your emotions and learn what helps you feel better. The coping mechanisms you developed now will help build resilience for whatever comes your way.
Sometimes, despite our best efforts to curb sadness, it doesn’t help. This could be a sign of clinical depression. If you are experiencing the following symptoms more days than not, tell your healthcare provider.
If you or someone you know is in crisis and needs immediate help, it’s crucial to contact a local emergency number or a mental health professional immediately. For those in the United States, the National Suicide Prevention Lifeline is available 24/7.
You can reach them by calling 988
This line connects you with trained counselors who can provide support and guide you to the necessary resources. Remember, you are not alone, and help is available.
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